Q UPLYFT IS A SPACE for individuals with primary lymphedema and their friends and family to share stories, connect with one another, help, and. find support. IF you're interested in uplyft . . . * _—_— —_— [weer cGane © 808AM 72mm | eeees Carrion ‘5:08 AM 7a eeeee Camo: © ‘B08 AM os i oF ¢ The time it alll began written! on march 5 =2015 se eM le OS LIVED WITH SWELLING in my right leg for two years before being diagnosed with primary lymphedema at the age of 22. What began as minor pooling around | my knee gradually spread to my lower and upper leg, until the entire limb became too large to conceal. | was abbe ‘to ignore the terrifying enlargement long | enough to complete my last final exam and walk across the stage to receive a Bachelors Degree. Then | lot myself ye . —— eee Care F = &0e AM 7s setts Carton F 2:03AM 75% a sence Corer & 608 AM 75% — = > —a cathy tsui = ; < your story < find support OOO% = ae Tre: QRRREND keywords to link images be _= _ | and videos aaron j. (uplyft tean = 1 pe i Discovering the new me i ¥ mY Hi Megan, Welcome to the Uplytt 9.--! . community! Hf you have any = = questions just message us here. “ “ae m story Gmnme really what you need in these moments. pur message here SUBMIT ‘We'll help you out at anytinne. fo Hi Aaron! | just signed up with Uplyft. | was wondering if you could answer sorte of my questions about adding friends, Thanks! Here's what we've found in Voncouver, BC, Camada i+] A Maria Shaw West Groadway and Meather St oe a) Shaanon Claude +] o Fiona Wang We SEND figure 1. Screens from Uplyft application, a tool to connect primary lymphedema patients. REFERENCES [1] Conrad, P., and Barker K. K. The social construction of illness: Key insights and policy implications. Journal of health and social behavior, 51 (1), 2010. 67-79. [2] Harding, J. E. The experiences of young people with primary lymphoedema. British journal of community nursing 17, Supé, 2012. $4-S11. 14 Oct. 2014. http://connection.ebscohost.com/c/arti- cles/83621556/experiences-young-people-primary-lymphoedema. [3] Williams, A. F., Moffatt, C. J., and Franks, P. J. A phenomenological study of the lived experiences of people with lymphoedema. International journal of palliative nursing, 10 (6), 2004. 279-86. October 11 2014. http:// www.ncbi.nim.nih.gov/pubmed/15284623. 31