Navigating the complex web of Cancer Caregiving: Designing Comprehensive Support Services for Family Caregivers of Cancer Patients

Cancer care in Canada consists of many stakeholders who function together and form a large network or system. Although the Canadian Medical Association in a collaborative effort between the Canadian Cancer Society, Statistics Canada and the Public Health Agency of Canada projected a high number of cancer diagnoses in the country in 2023, there are still loopholes in the care system that lead to difficulties, stress, and anxiety for patients and their family caregivers. (Canadian Cancer Statistics, 2023) The complex nature of the structure affects both patients and family caregivers alike. Family caregivers usually accompany the patients, provide emotional support, and make important decisions throughout the care-giving journey. Additionally, they have the added responsibility of managing their own work and personal life. It thus becomes of utmost importance to ensure that navigating the system and understanding the next steps to be taken towards caregiving is not an added worry. This thesis study aimed to examine and analyze the challenges faced by family caregivers while helping their loved ones to navigate the complex cancer care system in Canada, especially British Columbia. Starting with a systemic lens, this study explored possible tangents and challenges that these family caregivers face as they move through the system. This study uses a combination of secondary desk research and primary field research in the form of interviews to understand the problem space. Cause-effect loop mapping, stakeholder mapping, user journey maps, service blueprints were then used to understand, categorize, and organize the information within the research space. Various sets of design opportunities are presented by this study. It offers possible design interventions, especially in the form of a service, facilitated by a digital tool like an app or website to support and empower family caregivers in British Columbia to better assist their loved ones throughout the journey.